01/27/12 @ 10:22 PM – In response to “Can you explain that in plain English?”

Sent to Jay’s Men’s Group (Junto) on January 27, 2012 at 10:22 PM.

Your skull is made up of a bunch of plates that move independently of each other when you are young.  As you get older, they grow together.  It is possible for them to fuse together too early, when you are a little baby.  When they do that, it can prevent brain development because the brain is limited on where it can grow to.  This is bad.   Continue reading

1/31/12 @ 10:11 PM – Summary of Events to Our Birth Class

Sent to our Birth Class on January 31 at 10:11 PM.

Friday, January 27, PiElla had a CT Scan at Seattle Children’s Hospital.  It was found that her left lambdoid suture has fused shut early (it normally fuses between 20 and 40 years of age).  That means that bone has formed early and closed the gap between the plates on the back-left of her head.  The result is that her skull will not grow right without surgery.   Continue reading

1/28/12 @ 10:01 AM: Introductory Post to CranioKids.org Forums “5 months, diagnosed fused left lambdoidal suture”

Our first public posting of our story, to CranioKids.org on January 28, 2012 at 10:01 AM, after hours of frustration because our account was not approved for posting.

Summary:5mo daughter fused left lambdoid and two extra lower sutures. Surgery might not be required or even recommended. Trying to balance the options and figure out what is best to do. Wife needs support, I need information; we both need reassurance that everything will be okay. We hope that this is the greatest of her problems and that it is not a sign of many more to come.

Long Version:

Continue reading