Last Monday we went in for PiElla’s 9 month follow-up on her skull surgery. We met with Doctors Lee and Hopper. They were excited by how well PiElla’s head has healed up! Everything looks great. We do not have another appointment with them until she reaches two years post-op.
The doctors also asked if we would ever be willing to talk to another lambdoid craniosynostosis parent about the endoscopic option. We said absolutely.
Exciting times for us!
Sunday while we were eating dinner, PiElla was determined to master the art of eating peas with a fork. She spent about ten minutes in rapt concentration attempting to pierce the pea with her fork. She was so close to getting it, but every time the pea rolled just enough to not get stabbed. Then she tried squishing the pea with the flat side of the tines, but the pea wouldn’t stick between the tines. Finally she tried setting the pea on her fork and lifting it to her mouth, but every time the pea would roll off. She never did get the pea from plate to mouth via self-administered fork, but she approached the whole thing with a calm determination and creative adaptation that was awe inspiring (not to mention incredibly adorable and chuckle stimulating).
Mother and Father took me to another doctor today. His office was really nice. He had a lot of toys. I climbed all over. I played with other kids. It was fun!
The nurse showed cards to me. They had funny lines. I looked at them. She told me I was good and cute. Then she put drops in my eyes. That felt funny! But it was okay. She said my eyes would get wide. Mother and Father said I would be okay. I trust them.
We went and played more. I had fun. I looked at all of the kids. I am lucky. My doctor visits feel simple.
The doctor came and called my name. He was funny. He had Father hold me. Father held my hands down. I did not like that. I let him do it though. I got to look at a funny microphone. It had lights and wiggled. It was fun. The doctor shined lights in my eyes. He held a prism up to them and bigger glass. Father said it was a mag-na-fy-ing glass. I think Father uses a lot of silly words. The bigger glass made the doctor look funny.
The doctor said I was far sighted. He said that is normal at my age. He said my optic nerves are good. No worries about pressure. He said I should talk to my other doctors. It might be good to come in once a year and check. He was really nice.
Mother drove us to her work. Father and I took a nap. A car bumped us. We woke up. I went with Father to Portage Bay Cafe. We ate potatoes and a French dip. It was tasty. I had steamed milk with vanilla. The straw did not work right. When I bit it it stopped. My other straw works better when I bite it. I was confused. The milk was tasty.
Father took me to the big garden. He said it was the arrrgghhh-bow-reee-tummy. We walked a lot. The trees were pretty! I liked the colors. I loved seeing the Doggies! I pet a lot of doggies. I pet a man-ee-cured poodle and a shepherd and a weenie and a scottie and a mutt. I said hi to everyone. People are friendly. The little old ladies giggled. I had a lot of fun.
I went home with Father. We saw cousin Caitlyn. Father saw Alex and Holly. I talked with them. We went to find Caitlyn. She had went home. I was frustrated. We saw Sheila and Loralei. We went and played with them in the new park. Louis joined us. Alex joined us also. I had a lot of fun. I climbed the play structure. I tackled the dinosaur. I can crawl now, fast! I can get away if a monster tries to bite me. I am not as scared of statues now. I think Father’s statutes are silly. He told me he meant statue. Father is silly.
Father and I went home. We snacked and went to the bathroom. I like to use the potty now. I tell people when I need it. I love to climb the stairs. Father told me we had to go back outside. I picked up the voter ballots for Father and Mother. We went outside. Father took me to the mailbox. I held the voter ballots carefully. They are important! I put them in the mailbox. The mailbox ate them. Father says I did my civic duty. I helped Father and Mother vote. I hope Mother and Father picked the right people.
I am tired. Mother helped me climb up the stairs after dinner. I like to climb the stairs. I can go up them quickly. I do it on my own.
Time for bed.
Little sunflower PiElla got into the Halloween spirit this year (“there are lots of little, bright, crinkly packages I get to hold and put into and take out of a basket!). We had fun visiting our neighbors and being visited by our neighbors. And (almost) no screaming! (We were expecting she might be freaked out by the costumes, but she took it in stride).